HIV and Our Youth

KEY FINDINGS

1. HIV hits close to home for many young people of color.

Due to a combination of social inequities and where the disease initially took hold, HIV has disproportionately affected Black and Latino populations. The uneven impact of HIV is reflected in the starkly differing views and experiences reported by those of different races.

About three times as many Blacks and Latinos, as whites, say HIV today is a “very serious” issue for people they know.

National Survey of Young Adults on HIV/AIDS chart: How serious of a concern is HIV for people you know?

Almost twice as many Blacks, as whites or Latinos, say they know someone living with or who has died of HIV. One in five Blacks have a family member or close friend affected by HIV.

National Survey of Young Adults on HIV/AIDS 15

About a third of Black and Latino young people say they worry about getting HIV; approximately half as many whites express concern about their own risk.

National Survey of Young Adults on HIV/AIDS 16

2. Many are not aware of advances in HIV prevention and treatment.

In the five years since PrEP, the pill to protect against HIV, was approved by the Food & Drug Administration, only about one in ten young adults know about the prevention option.

When taken as prescribed, PrEP is highly effective in protecting against HIV. PrEP is also a significant advance in that it provides women with the first HIV prevention tool that they can control themselves.

National Survey of Young Adults on HIV/AIDS 17

There are also gaps in understanding of how the medications used to treat HIV work. While most young adults are generally aware of the health benefits of antiretrovirals (or ARVs), many understate their effectiveness and few know they also prevent the spread of the virus.

ARVs work to reduce the viral load to levels undetectable by standard lab tests. Studies show that when the viral load is less than 200 copies of virus per milliliter of blood, long-term health is greatly improved and sexual transmission of the virus is extremely unlikely, if not impossible.

National Survey of Young Adults on HIV/AIDS chart: How effective are current HIV treatment options

3. Stigma and misperceptions about HIV persist.

Most young people today say they would be comfortable having people with HIV as friends or work colleagues, but when it comes to other situations, the stigma of the disease is evident.

National Survey of Young Adults on HIV/AIDS chart: How comfortable would you be

Providing insight into what may be behind the stigma, the survey also reveals a lack of understanding among some about how HIV is and is not transmitted.

National Survey of Young Adults on HIV/AIDS 20

4. HIV testing is occurring less than generally recommended. 

The CDC recommends HIV testing as part of routine health care, yet more than half of young adults say they have never been tested.

Black young adults are more likely – and more recently – to report having gotten an HIV test.

National Survey of Young Adults on HIV/AIDS chart: Have you ever been tested for HIV

5. The Internet is a go-to resource for HIV information.

After school, searching online is one of the most often named sources of HIV information by young adults (multiple responses possible). Almost as many cite some form of media as doctors for at least “some” information.

National Survey of Young Adults on HIV/AIDS chart: How much information about HIV have you gotten from

Four in ten say they would like more information about at least one basic HIV topic asked about. More Black and Latino young people indicate they want to know more about HIV, across all topics, as compared to whites.

National Survey of Young Adults on HIV/AIDS 24

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National Men’s HIV/AIDS Awareness Day

HIV.gov Shares Communication Tools for Gay

USCA: 2017 “See You in DC!”

 

 

 

 

 

Dear Eric,
This is the final communication prior to seeing everyone at the United States Conference on AIDS. The 2017 meeting has already surpassed the registration numbers from both the 2015 and 2016 conferences. In other words, there will be lots of people. Please be patient and use your time standing in line to meet your colleagues from across the country.

If this is your first time attending USCA, you may be surprised by the diversity of attendees. Typically, 60% of the participants are people of color, 55% are women, 30% are people living with HIV, 75% of the men attending are gay men, and there is a significant delegation from the trans community. USCA strives to have representatives from all 50 states and the territories. In other words, this is a community conference that reflects the full scope of the epidemic. If you’ve never been to USCA, you will quickly see the difference from other conferences. We are proud to offer a safe space for people to be themselves without judgement or discrimination. The 2017 meeting will be a USCA Family Reunion and our family values are built upon diversity, inclusion, and acceptance.

It’s been a challenging time in Washington. I believe that is why this year’s meeting is so important. People are fearful about the future. Between healthcare reform and the possibility of cuts to the federal HIV budget, attendees are seeking answers and community. While we may not have all of the answers, we will definitely have community. This year’s USCA is structured to not only train, but also to remind us why we do the important work that must be done. For many of us, this movement is more than just a job; it’s our life and the lives of our communities. In a world that can be very mean to people who are different, USCA celebrates our strange and wonderful family.

Latest Conference Information
To get the latest information on the meeting, download our smartphone app. It is a virtual portal of session descriptions, social media engagement, and logistic updates you will need to make the most of your conference experience.

Houston & SE Texas
USCA will have a moment during the Opening Plenary to stand-up for Houston and SE Texas. Six weeks after Katrina, NMAC brought a group of donors to New Orleans to see the devastation. As soon as Houston is ready, we intend to work collaboratively with other national organizations to support people living with HIV and HIV services in the region.

Recently, I received an email from Deondre Moore who lives in Houston and I wanted to share a small portion:

“USCA, for me, will hopefully be a time to heal and where I can refocus and get back on track. More importantly, during USCA it will be my first time seeing my mother since before the storm, and I cannot wait.”

After Katrina, we brought a small group of HIV leaders from New Orleans to DC to begin the planning process of moving forward. I remember how grateful they were for the meeting because it was the first time they could take a hot shower. This is another tragedy that we must and will overcome.

Hashtag
Use the hashtag #2017USCA. We’re not looking for stories about NMAC. We want you to tell the stories of people you meet at USCA, people who have committed their lives to ending the epidemic. Help expand the discussion about HIV on social media. Remember to post your photos!

Travel
Most people will arrive at either National Airport or Union Station. The quickest way to the hotel is via metro. The closest Metro stop to the Marriott is Convention Center on the GREEN and YELLOW lines. The Yellow line goes directly to the airport.

Hotel
The 2017 host hotel is the Marriott Marquis, 901 Mass. Ave NW. All of the workshops and plenary sessions and the exhibit hall are here. Unfortunately, the Marriott along with three other conference hotels are sold-out at the conference rate.

 

Registration
Registration starts on Wednesday, September 6th at 4 PM. It will be on the mezzanine level of the Marriott. To be greener and to save money, USCA only prints a “limited” number of program books. However, the full content can only be found online. The conference will have free Wi-Fi so remember to bring your laptop or smartphone.

Other Events
When putting your schedule together for the meeting, think about adding the Opening Reception, Film Screening, and the House Ball by Casa Ruby to your things to do. These are great ways to network with fellow attendees and celebrate the diversity of our movement.

The Opening Reception is on Wednesday, September 6th from 6 PM to 8 PM. It is at the Library of Congress in the James Madison Memorial Building, 101 Independence Ave. SE. The closest subway stop is the Capitol South metro located on the Orange and Blue lines. Congresswoman Maxine Water, Congresswoman Barbara Lee, and Congresswoman Ileana Ros-Lehtinen will be our special guests.

There will be a special screening of Nothing Without Us: The Women Who Will End AIDS on Friday, September 8th at 7 PM in Shaw (meeting level 3 of the Marriott). This 70-minute film reveals that no plan to end the HIV epidemic will be complete until it addresses the complex realities of all women’s lives.

Finally, there is a House Ball produced by Casa Ruby on Saturday, September 7th. The Ball starts at 8 PM in the Marquis Ballroom at the Marriott. It is free for conference attendees, although there is a $25 cover for everyone else. All funds raised go to benefit Casa Ruby. This is a special opportunity to experience the culture and glamour of DC’s trans community.

Thank you for being part of my strange and wonderful family. I look forward to seeing you in DC.

 

Yours in the struggle,

Paul Kawata

 

A Special Note from USCA Media Sponsor FHI 360
Hello USCA Partners,
We are excited to be partnering with FHI 360 again this year to provide you and USCA conference attendees a curated live coverage of experience through their Crowd360 web platform. Through Crowd360, FHI 360 will leverage the 2017 USCA social content being shared over multiple platforms (Twitter, Facebook, Instagram, Blogs, Conference Mobil App, etc.) and curate it into three different delivery vehicles. As in the past, these vehicles include:

2017 USCA Hub – The home for digital content being shared at 2017 USCA.
2017 USCA Daily Delivery – A HTML-based recap of the digital content and conversations taking place the previous day.
2017 USCA Live Social Blog – A crowd-sourced live blog created from live coverage being shared on social media (Twitter, Facebook, Instagram, Conference Mobile App, etc.).

2018 United States Conference on AIDS

 

 

June 12th has been designated as Orlando United Day.  On this day, we remember the 49 angels who were killed at the Pulse nightclub in Orlando. This was a deliberate attack on the LGBT community that must never be forgotten.

To show our support for Orlando and the LGBT community, NMAC is pleased to announce that we will hold the 2018 United States Conference on AIDS in Orlando on September 6-9, 2018.  Please save the date.

The 2018 meeting will highlight the contributions made by the LGBT community to our efforts in ending the epidemic.  Our community has suffered so many losses and we must stand together.

The 49 beautiful portraits in this e-newsletter were created by 49 different artists across the country.  Each portrait portrays someone who was killed in the Pulse shootings.  They are all on exhibit at the Terrace Gallery at Orlando City Hall from May 1 – June 14, 2017.

Yours in the struggle,

Board & Staff of NMAC
Stronger Together!

AIDS United’s Statement on President Trump’s Budget for FY 2018

AIDS United is shocked by President Trump’s Fiscal Year 2018 budget request released today. It threatens to roll back the progress in the fight against the domestic HIV epidemic. Now more than ever we must maintain and strengthen our progress towards our national goals and priorities of reducing new HIV infections, increasing access to care and improving health outcomes for people living with HIV, and reducing HIV-related health disparities.

The deep proposed cuts to domestic HIV and STD prevention cannot be reconciled with the goal of preventing new HIV transmissions and the rising rates of STDs. The proposed $59 million cut to the Ryan White HIV/AIDS Program, coupled with a fundamental restructuring of the Medicaid program capping federal spending for the first time to the tune of a $610 million funding reduction over the next decade, diminishes every community’s ability to deliver quality health care to people living with HIV by eliminating AIDS Education and Training Centers and Special Programs of National Significance (SPNS).

“AIDS Education and Training Centers (AETCs) are essential to the HIV care continuum and the success of the national goals and priorities to end the epidemic,” said AIDS United President & CEO Jesse Milan, Jr. “AETCs assure that providers know and apply the best standards of care for people living with and at risk for HIV.”

Further, AIDS United is particularly concerned that the President’s budget eliminates SPNS and reduces funding for Minority AIDS Initiative (MAI) programs. SPNS and MAI programs address the HIV epidemic by developing targeted, innovative approaches to reach chronically underserved people.

“Investment in targeted approaches are effective and save money, at a time when 1 in 2 and 1 in 4 Black and Latino gay and bisexual men respectively are at substantial risk for HIV infection in their lifetime. How can we reduce funding to programs that address these disparities? The President’s budget isn’t just a set of numbers, it’s a disturbing statement of values. Every voter must send their own message to Congress to express that they value the health of our people,” said Milan.

AIDS United urges Congress to reject the draconian cuts proposed in the President’s budget request and support funding for Medicaid, HIV programs, and STD prevention. Congress cannot idly allow the return of reduced, sequester discretionary spending caps for fiscal year 2018. These restrictive caps must be raised so that non-defense discretionary programs, which include HIV programs, can be adequately funded in fiscal year 2018. A bipartisan budget agreement that provides relief from the sequester spending caps while preserving parity between defense and non-defense discretionary programs must be achieved for 2018.

“The president’s budget would turn back the clock for years and years on progress to end the HIV epidemic. We call on Congress to keep the country moving forward,” said Milan.

AIDS United Responds to Fiscal Year 2017 Omnibus Appropriations Bil

 

AIDS United acknowledges that the Fiscal Year 2017 omnibus appropriations bill, released last night, provides continuity of HIV funding for most domestic programs. This is an important development for maintaining our progress towards the national goals and priorities of reducing new HIV infections, increasing access to care and improving health outcomes for people living with HIV, and reducing HIV-related health disparities.

While most HIV programs will see level funding in the budget, AIDS United is concerned that a $4 million cut to Ryan White HIV/AIDS Program Part C clinical providers and a $5 million cut affecting the budget to fight sexually transmitted infections will diminish our response to HIV and health care, particularly given the increasing cases of sexually transmitted infections, such as syphilis, among men who have sex with men.

“Knowing that Congress plans to keep funding intact for most HIV efforts is reassuring, but we urge Congress to also ensure that Part C clinical providers and our response to sexually transmitted infections are fully funded,” said AIDS United President & CEO Jesse Milan, Jr.

AIDS United is particularly appreciative that Congress listened to the voices of people living with and affected by HIV in increasing funding for the Housing Opportunities for People With AIDS (HOPWA) program by $21 million. “Housing is fundamental to ensuring that people living with HIV live longer and healthier lives and we thank Congress for recognizing the importance of this program by securing its current stability,” said Milan.


About AIDS United: AIDS United’s mission is to end the AIDS epidemic in the U.S., through strategic grant-making, capacity building, formative research and policy. AIDS United works to ensure access to life-saving HIV/AIDS care and prevention services and to advance sound HIV/AIDS-related policy for U.S. populations and communities most impacted by the epidemic. To date, our strategic grant-making initiatives have directly funded more than $104 million to local communities, and have leveraged more than $117 million in additional investments for programs that include, but are not limited to HIV prevention, access to care, capacity building, harm reduction and advocacy. aidsunited.org

Upcoming PMBSGN Support Group Meeting

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